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Last
month the Board of County Commissioners proclaimed April as Autism
Awareness Month in Miami Dade County in conjunction with an Open House
at the University of Miami Center for Autism and Related Disabilities.
I am honored to have sponsored this as a labor of love. Autism is an
issue that is very close to my heart.
A little over three years ago my wife and I struggled
to understand why our daughter Nora was not communicating like other
children her age. After numerous doctor visits and many tests our
daughter was diagnosed as being autistic.
Autism is a complex developmental disability that
typically appears during the first three years of life. It is
estimated that autism occurs in 1 in 500 children and it knows no
racial, ethnic or social boundaries. Autism affects each person
differently. It affects the normal development of the brain in the
areas related to social interaction and communication skills.
Individuals with autism typically have difficulties with verbal and
non-verbal communication and social interactions, often making it hard
for them to communicate with others and relate to the outside world.
Autism is not caused by parents and does not appear to
be the result of environmental problems. Unfortunately, a specific
cause of autism is not known. Evidence shows autism might have a
genetic basis, but no specific gene has been linked to it. But for
most, there is no specific cause for autism. These non-specific
answers can be very frustrating for parents and family members who
would like some explanations.
Once my daughter's diagnosis was complete, my wife and I recognized
Nora needed aggressive intervention. Not a day goes by that Nora is
not involved in some type of therapy. Nora is now in kindergarten in
the public school system where she spends most of her day in a
mainstream classroom along with "normal" kids. But, there is
a long way to go.
Another challenge facing families of autistic children
relates to research and health care coverage for treatment and therapy
of this condition. Luckily for my daughter and family, we have been
able to work through the various obstacles and ultimately get Nora the
care she deserves and needs. Unfortunately, others are not so lucky.
Currently there is important legislation both at the Federal and State
level that stand to have a tremendous impact on hundreds of thousand
of children, adults and families living with autism. Our federal
legislators are currently looking at landmark legislation that will
increase the current federal allocation for autism research and public
awareness from $15 million to over $40 million per year for five
years. These are all steps that were unheard of just a short time ago.
At the State level our legislators currently are
reviewing an act relating to health insurance coverage that would
require health insurers or health maintenance organizations that offer
major medical coverage to include coverage for treating autism. I am
confident that this legislation will be passed by our state
legislators and signed by Governor Bush during this session. This will
provide coverage for many families who currently go without treatment.
Treatment that can be costly and currently is not covered by
insurance.
My wife Dori and I admit that some days are roller coasters of emotion
but we realize that each milestone in Nora's development is actually a
huge mountain range for her. And despite the uncertainty that lies
ahead for Nora, our family is stronger and my daughter is at the heart
of our love.
For questions and information on autism, I encourage
you to contact the University of Miami Center for Autism and Related
Disabilities (CARD). CARD seeks to provide support and assistance to
people with autism and related disabilities. These services are
available to the community free of charge. The Center may be contacted
at 800-928-8476.
As always, please remember that my staff and I are
always available to assist you and your family. My Downtown office
number is 305-375-5680 or my District Office number 305-529-0599.
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